Understanding Post Concussion Syndrome



I am NOT a doctor, or any form of a registered medical person, this is just my own experience from healing from a brain injury and trying almost everything I could …

33 Comments

  1. I got PCS last year September, during November and December I started losing memory, detachment from the world, brain fog and a lot of confusion. It started feeling better in January but I got another hit to the head. So now I'm wondering if my symptoms will get a lot worse than what it was last year? So far I feel alright other than having neck pains

  2. Thank you for making this video, glad to know someone else understands what this is like. I experienced 4-6 concussions in the past 2 years from age 13-15 and I am hoping it gets better. I had ended up losing all memory of my life before it. I suffer from constant headaches/migraines now and it is very hard to help people understand my suffering ,but I am glad to know that other people can understand it now.

  3. My dad punched me in the back of the head 5 or so times in September last year, and I've been living with the "knives digging into your brain" headache constantly ever since. Truly is the worst injury I could imagine sustaining – any other part of the body couldn't be as bad as the Brain, and the unbearable headache loss of quality of life, loss of the mental faculties and emotional wellbeing…

  4. I recently had a 10 lb statue fall on top of my head from 3 feet and yesterday I was diagnosed with post-concussion syndrome and so far I don't like it I feel fucked-up can't even drive I I'm an emotional I can't keep up with my two year old and I really really hope this slowed reactions slurred speech headaches and things I really am impacting my life and I'm scared I pray for all of you suffering out there

  5. Hi Geoff, I sent this video to some important people in my life today. I’m having a very difficult day. Very difficult. You’ll know what I mean. I have PCS. I’m three years out. I’m at the end if my tether. I heard you got removed from our online group. I’m really sorry to hear that. Please don’t let it hurt you. Everyone is complaining about it and saying it shouldn’t have happened and we’re all worried about the affect on you. I’m sending you love and support. Please keep communicating through your videos! They’re the best and so are you! All strength to you. Maggie 🌷🌷🌷

  6. Geoff, I just shared this video on Facebook to see if I could get somw frienda to underatand a lol what I'm going through. I'm loosing friends left and right, I'm learning what a true friend is late in life. Thank you for making this video. My hubby has Combat PTSD, and loved this video for the amazing advice and understanding.

  7. I’ve only been dealing with PCS since March of 2018, sad part is that I’ve already attempted suicide, something I NEVER in a million years would’ve ever considered appropriate for any situation…. my family didn’t understand the loss of taste and smell, my doctors called me delusional…. it’s just so sad and very difficult…. I even had a psychiatrist tell me I’m imagining the severity of the concussion….

  8. Hi everyone, I just want to share a bit of experience and hope for the ones who suffer from PCS. I got it in April 2016 after I hit my head on a football post. Long story short, got really dizzy and nauseous after 6 days and took a few weeks to diagnose that it was PCS. 2 years and a half forward: the first year was tough, had to quit my job, started therapy and went through 2 main setbacks. Good thing though is that it gets better over time. I received the help of a good therapy institution which focused on learning to manage my time and energy and also a lot of fysiotherapy, focusing on the movements of the shoulders and neck. Bit by bit I started to do more sport again. I kept some symptoms, the main ones after getting better were and still are a bit: fogginess, fatigue and feeling of weakness in the legs. On the positive side, I felt real better in January 2018, so 1 year and 9 months after the accident. So I kind of have a normal life again except that I don't work full time. After feeling much better in 2018 I started going out a lot more, trying to get back to my usual party animal life. Although I can pull myself through one or 2 good parties now, I had to acknowledge there were consequences: the tiredness and fatigue can come back for a few days, and I can experience big drops of energy which can be pretty stressful when you're not at home. While writing these lines, I am experiencing again some fatigue, after a great peiode when I was thinking about getting a full time job again. Obvisouly I am starting to review my plans a bit now 🙂 The main ideas I want to tell you here are: things get better with time, get help from an institution which lays the stress on fysiotherapy, meditation and energy management (it's called ergotherapy). Don't lose hope, you might not be able to have a full time 100% functioning life like before, but there's a high chance you'll experience again a symptom free life by period. It happened to me for a few months, and that means if I went there once I'll go back there again soon and for longer. That's how PCS works, one step forwards and two step backs, and then 3 steps forward untill you're kinda clear, but it sure takes a long time. Even though I feel fatigue right now my life is way closer to normal than before: I can run again a few kms, I do planking everyday, I play tennis almost every week, even played almost 3 hours 3 weeks ago, I can travel, party until late when I feel good, have a normal social life in loud environments go to concerts,…
    Really the last obstacle now would be to get back to a full time job without burning all my energy and get rid of the fatigue completely. So don't lose hope and do sports and rest as much as you need when you don't feel well enough to do your activities. And if you feel depressed it is important to go talk to a shrink. Last but not least, get a physician or neurologist to officially recognized you have PCS for the ones who didn't yet, it is extremely important to know that science and medicine recognise this condition and that people around you know that you don't suffer from an imaginary illness. All the best to you fellow PCS warriors 🙂

  9. Thank you so much for this video! I had my accident back in February and for a few weeks recently, I felt like I was doing much better. My doctors let me go back to work and I was on my way. Just this last week I’ve noticed regression, my sense of time is off, the back of my head hurts and I’m always confused (to name a few things). I don’t like trying to tell people how I’m feeling because everyone expects me to be better and I feel like they’re upset with me when I’m not… that or they don’t believe how bad it’s effecting me. Anyways, thank you so much for sharing.

  10. Hey Geoff, I’ve been watching your videos since I was diagnosed with my concussion November 2017. It’s so great to know that there is someone out there that understands what I’m going through. The main symptoms I deal with are depersonalization, anxiety, depression, and feeling like my brain is slowed down. I’ve had luck with Lionsmane, the ketogenic diet, CBD oil, melatonin, and NAC. I’ve noticed a positive change within the last 2 weeks and it feels good. I know that setbacks can come, but I will continue down this road of healing .Daily exercise has helped too. Thanks again for your content, it has helped tremendously along this rough journey for me.

  11. I’ve been suffering since 2011. Today is the worst my car broke down on a busy highway. Panic attack was up the roof then I started praying. God answered and helped me. There is a God, pray. It’s not easy, it’s so dark for me now. Just asking God to help me get through the day. I will trade everything just to be normal again

  12. Great series. Quick question, do you tend to have PCS issues when you encounter minor bumps to your head? If so, anything you have found that can prevent/help this? I've been struggling with PCS for about 2.5 years now and these small bumps are the things that cause setbacks.

  13. Yeah man, my symptoms go up and down because of my microbiome. Inflammation rooting from my gut. (Overgrown bad bacteria and not enough good) It's a rollercoaster for sure. Appreciate your video.

  14. or maybe i am just drowning out the background noise when i watch tv? everyone complains that it is too loud, but i can't hear it with anyone talking in the next room.

  15. the sensitivity to sound eventually seems to become deafness after a while. but sometimes i get the sensitivity back. it is better not to think about the specifics of it because now i won't be able to sleep because i'll be hearing every noise or focusing on the ringing in my ears.

  16. Thank you so much for this video series Geoff. I have been watching them since a few months after my car accident in Aug 2016…just a few months after you were struck in the head with a softball. It feels very supportive to hear words from someone who ‘gets it’! You are helping many people, for that I am sure.

    I just wanted you to know that I have emailed this particular video to everyone that is in my life so they can be educated further through your words of wisdom. Well done, and I am very grateful that you are giving so selflessly to help others through their Traumatic Brain Injury. Having said that, early on, after the accident, my Occupational Therapist said “we are going to refer to your injury as a Traumatic Brain Injury because let’s call a spade a spade…that is exactly what you are suffering with.” She added “too many refer to a TBI as a concussion and I feel that it downplays the significance of the injury”. I feel that she couldn’t have spoken truer words!

  17. Very well said. My family don't believe I had a concussion. They thought it is all in my head. My dad did even make fun of me. I'm 9 months in and after a major setback I feel worse then ever before and it's been months without improvement. Thoughts of suicide haunt me when it's worst. My family don't seem to care.
    Only my big sister believes me. I recently told her about my suicidal thoughts when she asked me if I was planning to harm myself. It was the hardest thing I've ever said. I cried a lot. She found me a psychiatrist to talk to and I meet with my sister once every week. I don't know what I would do without her. She is a saint.

  18. Great stuff, Geoff! Glad to see you are in a better place now. I wonder if your wife would be willing to do a vlog with you about PCS from the caregiver's side and the two of you together about tips for facing PCS as a couple? I know you've met up with Ralph of Ralph & Lou and I really appreciate how they've shared working through things together. I think it could be very helpful since, like you said, partners suffer too. Thanks

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